About

Hi! I’m Amanda. Welcome to my cozy little corner of the internet— Her Chronic Wellness.

On the surface, I’m your average 20-something living her best life. I have a fulfilling job, a vibrant social life, a golden retriever, and a loving, supportive partner. But I’m also a glass child. A spoonie. A medical mystery. A girl who leaves doctors scratching their heads and shrugging their shoulders.

I live with a neuromuscular orphan disease called Limb Girdle Muscular Dystrophy 2L/R12. The TLDR: My condition causes progressive muscular atrophy and wasting in my arms, hips, pelvis, and legs— and there is no cure.

Life looks a lot different than I imagined it would at this age. Over the past decade, I’ve had to constantly adjust to new normals while grieving the loss of old ones.

Navigating chronic illness is so much more than some clinical notes in a patient portal. It’s battling imposter syndrome and unsolicited advice. It’s misdiagnoses and mountains of medical bills. It’s working up the courage to share your condition and then getting dumped. It’s unpacking years of medical trauma. It’s leaving the dance floor early. It’s acknowledging that birthdays can be so f***ing hard.

And it’s not being talked about enough.

So I created Her Chronic Wellness. Think of it as a virtual hug for the glass children— a little wellness blog that holds space for those on chronic journeys of their own. Over the past 14+ years, I’ve picked up tips, tricks, and bits of comfort that have helped me cope. I know I can’t cure my disease, but I can share some of the things that have made the tough days a little easier. And in doing so, I hope to add something good to the world. 🫶🏻

I’m so glad you’re here.

Be well,

Amanda